SEN Organisations

National Autistic Society
The leading UK charity for people on the autism spectrum, and a wealth of knowledge and resources for anyone looking to find information, advice, training or support. 

The PDA Society aims to offer support, advice and information to anyone involved with an individual with PDA, whether suspected or diagnosed, child or adult.

Their website has information on PDA, as well as PDA related resources for parents, teachers and professionals. There is also an online forum to discuss PDA related topics.

This PDA Resource website links to various recommended websites, Facebook pages, blogs, documents, graphics, & videos etc. and gathers together the best available information surrounding PDA, from sources around the world, to help parents, carers, professionals and others have a better understanding of PDA, and to provide help and support for people dealing with the condition.

Guidance on the special educational needs and disability (SEND) system for children and young people aged 0 to 25, from 1 September 2014.

Invaluable for understanding the legislation that schools and LAs are bound by.

Website providing information for understanding autism, including other parents stories. Also has an online forum which allows parents to connect with each other

Offers a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs (SEN). 

Also runs regular courses on apply or appealing for an EHC needs assessment and plan.

The Equality Advisory Support Service (EASS) is an advice service aimed at individuals who need expert information, advice and support on discrimination and human rights issues and the applicable law, particularly when this is more than advice agencies and other local organisations can provide.

Website to allow families to find the activities and support that suit their interests, preferences, lifestyle and budget, and that can make adjustments to support any additional needs they have.

A project that provides free advocacy to help parents appeal against their child’s permanent exclusion, they specialise in disability discrimination and cases where the child has special educational needs. 

The website has a wealth of information relating to parents rights and provides a guide to schools exclusion.

Charity for families of disabled children. Website provides a wealth of information including medical information, advice on your rights and where to get support

Parent led information, resources, and informed opinion about Children with SENs. Contains a wealth of articles about EHCP. and other articles & insights relevant to parents of children with autism. 

Linked to Contact A Family, the website provides the opportunity to make contact with other families via online forums or by listing your details in the “Find people” section which allows people to make direct contact with each other

Online forum for parents and carers of people with Autism and Asperger’s syndrome, allowing for the sharing of tips, venting of frustrations and having a laugh about things that other people won’t understand

Independent Parental Special Educational Advice, offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs (SEN) and disabilities

Leonard Cheshire Disability is the UK’s leading charity supporting disabled people.Every year, we support thousands of people in the UK and around the world with physical and learning disabilities to fulfil their potential and live the lives they choose.
Supports current and former bank workers and their families across the UK by providing information, advice, expert support services and in some cases, financial assistance.